Jack's Journey With A Special Heart: Prayers for Baby Mia!

Sunday, July 25, 2010

Prayers for Baby Mia!

Baby Mia, another baby with HLHS, lost her battle with HLHS today. I can not imagine what her family is going through. I pray for them and know that Mia is sending her love and strength to get them through this very hard time. Please send your prayers to Mia and her family.
Everytime I read of another CHD baby losing their battle, I can't stop the tears from falling. It hits home pretty hard. I can not imagine the pain that Mia's parents are having right now and I never want to live it. Although I fear it everyday!
Today, I will hug Jack a little tighter and tell him I love him a million times more. I can't imagine life without him!!! Keep fighting baby Jack, your strenght is what gets me through my day!!! I love you!!!

2 comments:

darcyJuly 27, 2010 at 6:50 AM
And we all love you! Keep strong hun, you guys are doing great! I will come visit soon and sing to Jack,you know how crazy he thinks I am, makes him laugh ; ) xoxo
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UnknownJuly 28, 2010 at 5:46 AM
We are all saying prayers for Jack. Keep strong he will be coming home soon. We love you. Jim & Cheryl
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Godspeed Lyrics by Dixie Chicks

Dragon tales and the "water is wide"

Pirate's sail and lost boys fly

Fish bite moonbeams every night

And I love you

Godspeed, little man

Sweet dreams, little man

Oh my love will fly to you each night on angels wings

Godspeed

Sweet dreams

The rocket racer's all tuckered out

Superman's in pajamas on the couch

Goodnight moon, will find the mouse

And I love you

Godspeed, little man

Sweet dreams, little man

Oh my love will fly to you each night on angels wings

Godspeed

Sweet dreams

God bless mommy and match box cars

God bless dad and thanks for the stars

God hears "Amen," wherever we are

And I love you

Godspeed, little man

Sweet dreams, little man

Oh my love will fly to you each night on angels wings

Godspeed

Godspeed

Godspeed

Sweet dreams

Here is something I found on another heart mom's website... so true!

What does it mean to be the parent of a child with a heart defect? It means going into your baby’s room a dozen times a night just to check to see if he’s still breathing. It means standing over the crib to watch the chest rise and fall and when you don’t see it move, you begin to panic and put your head down close to your baby’s face to try and hear him breathe. It means that when you don’t see the chest move and you don’t hear him breathing (because your own heart’s beating is drowning out any other sound in the room), you put your finger under the baby’s nose to feel the air on your finger – until you wake the baby and it stirs – and you’re thankful, so thankful that he’s still with you. It means feeling a huge sense of relief when he hears you and opens his eyes and smiles. It means saying a prayer of thanks for another day. It means measuring out his medication and panicking if he spits some of it out. How much did he spit out? One cc? Two or three? Then wondering if you should guesstimate how much more he should have and if you’d overmedicate him. It means checking his nail beds against your own to determine how blue he is today. It means asking your husband, your mother, or your sister, “Do his lips look blue to you?” It means snuggling him in an extra blanket for fear he won’t be warm enough. It means worrying that even a sniffle could cause an infection that could harm his heart. It means taking your baby to the doctor and worrying that he will catch something in the waiting room, so you walk back and forth in the corridor until the nurse calls his name and takes you straight back to the examination room. It means knowing that everyday is a blessing and a gift. It means knowing that you are the luckiest person in the world, just to be a parent. It means cherishing every moment, every breath with such intensity that you feel tears come to your eyes for no apparent reason. It means praying for a miracle to save your baby’s life. It means praying your marriage is strong enough to endure the hospitalizations, separations, and grief. It means praying for the will to live, even if your baby doesn’t. It means your own heart knows a pain, no parent should know. It means feeling weak, helpless, angry, and depressed because your child’s fate is out of your hands. It means feeling strong, determined, and brave because you know you have to be. It means your love knows new unlimited boundaries. It means your pride in your child’s accomplishments is unparalleled. It means your pain has taught you a deeper sense of compassion than you ever imagined. It means we are all united by the same feelings.

Jack's Journey With A Special Heart

Sunday, July 25, 2010

Prayers for Baby Mia!

2 comments:

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