So Jack had a cardio appointment yesterday and it went so well! His levels were where they needed to be and his EKG looked great! The doctor said he doesn't need to see him for another 3 Months!! 3 Months!!! Oh my thats a long time. He went from having weekley appointments to having appointments every two weeks, then monthly, and now... he won't go in for another 3 Months! It's scary and great at the same time. I can't believe he has made it to this point already. What will we do with all our time? The doctor said that he hopes we take this time to get out and about, ofcourse if the snow will ever stop. So come spring Jack and I are gonna get out of this stinkin house and start to enjoy all the great things that we can be doing. We are gonna remain "safe" until RSV (Respiratory Syncytial Virus) season is over which is until the end of March, but after that, look out world here we come!
In the next appointment, in 3 months( i sort of like saying that), we will probably get a better idea on how long we will wait for his next surgery. Timeline is showing it will most likely be before he is two. More like 18 months. With his Atrial Septum issues, the stent they put in to widen the septum will stay the same size, but because he is growing, his body will grow around that stent and that could cause some problems. So that is why they will do the surgery sooner rather than later.. But in the surgery, they will be able to remove the stent and fix the problem so there will be no more worries about the Atrial Septum. I can't believe Jack is one step (one surgery) closer to being more like a regular baby! He still ofcourse won't be able to do all that other kids do, but he will be pretty close.
Jack's doctor also said that he doesn't feel it is necessary to have an at home nurse anymore! WHAT!! But we like her coming!! She really only comes to do weight checks now and was going to stop coming once Jack hit 20 pounds anyways, but we really like her coming. I guess it is time for us to say our goodbyes to Nurse Jen! We will miss you Jen and we thank you for all that you have done for Jack. You have always been right on when you thought something wasn't right with Jack and you were always easy to talk to when I needed some advice! Thank you thank you thank you! We were very lucky to have you!
So I guess we are on the road to being "normal"! It feels pretty good! I have been breathing a lot easier and have been a lot less fearful. Although I don't think the fear will ever fully go away, it is definately leaving more space for enjoyment and happiness!
Leaving with one last thing:
February 7th through the 14th is National CHD (congenital heart defect) Awareness week! Please wear red in support of Jack and all his little buddies who fight this battle everyday and for all the babies and children who have earned their angel wings from losing their battle with CHD's.
Thank you!! and Jack thanks you for all of your support!!
